Thursday, April 9, 2009

The Official Welcome Post!

Welcome to my POTS blog. :) My name is Emma, and I'll be your tour guide today.

POTS (Postural Orthostatic Tachycardia Syndrome) is a serious, often life-altering condition that is overwhelmingly misunderstood in the healthcare world. In reading other POTS patients' blogs, I've come to realize that it is so immeasurably important for all of us to share our experiences, good and bad -- with doctors, medications, exercise, alternative therapies, and just the daily struggle that so few truly grasp.

Today I adjusted my privacy settings so that others with POTS will be able to simply Google search and find my blog. My hope is to reach several sectors of the Dysautonomia community -- POTS patients themselves, their family and friends, people who currently have symptoms and seek a diagnosis, and, well, everybody else. =]

Most people -- most doctors(!) -- have never heard of POTS. Some don't even believe it exists. This is perhaps one of the greatest sources of frustration. POTS is not easy to explain, diagnose, or treat. But getting a glimpse into another person's life may help everyone understand it a little better.

The address of my blog is

You can follow my story through my daily updates, check out the side-bar for some medical history, or just email me!

We will get through this together!

with love,

P.S. I'm trusting the system here. Please do not stalk me or plaigerize my work. Thanks!


  1. Ohhh...what fun is it...if we can not stalk you. Your no fun at all since the maid ate your cake!

    Just kidding!

    Thinking of you!

    You will get through this and we are all here to help you!!


  2. I have POTS, too. Thanks for writing about it!

  3. Hi Pam! Thanks for your comment-- great to know readership and awareness are growing. :)

    Be sure to let us know if you have any particular "break-throughs" with symptom relief or anything.

    Take care!