Well the theme song is animated. So it counts.
Feeling a trifle less crummy this morning. :)
Super-exciting news! My mom has gotten me an appointment with Dr. Janice Gilden -- a POTS specialist in downtown Chicago. She's the only POTS-approved doctor in Illinois who will see patients 18 and over. And the appointment's in just 4 weeks! (The other guy's next opening wasn't until July. Can you imagine?!) Weird side note - she's an endocrinologist. The first guy was a cardiologist, and the one who diagnosed me at Mayo was a neurologist. What category goes POTS fall under, anyway?!
Anywho, my mom was very encouraged by what she's heard and read about this doctor. It'll be a long day at the hospital -- redoing tests, taking a lot of blood, performing similar tests in a different manner, doing POTS-specific tests that not even Mayo has....sounds thorough to me! Looking forward to it. Well, not the testing necessarily, but certainly seeing a new doctor.
Also -- again, everything here is just a theory we found in our own research -- there's some friend of a friend who had POTS and some neck problems (like me!). She had neck surgery, and it's made a world of difference in her symptoms, says the grapevine. Can POTS be caused by neck injury? Looking into that as well.
bananas in pajamas!
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It falls into the category of confusingology.
ReplyDeleteThere is a central spot at the base of your skull about the size of a quarter where everything flows through. There are some theories that an alteration that impairs the flow (like a neck injury) at this point can cause dysautonomia-like symptoms. There is very little evidence however.
I sure hope the new doctor can help, and I hope the testing isn't too hard on you.
ReplyDeleteAnd JohnMark is right; the whole thing is very confusing. Maybe neck surgery is the way for you, and maybe not.