Monday, July 26, 2010


( ^ Found on another POTSy's blog - couldn't have said it better myself!)

Replied to a bunch of emails! My brain is doing so well! Seeing Dr. Grubb on 8/13 :-)


Saturday, July 24, 2010


Today I met a cute boy at a garage sale. His name is Tyler. He showed me his old car, told me about the new school he's starting in the fall, and got my phone number. Did I mention he's five? Yes, years old. His Cars car ("life-size!") broke because he buried it in a sandbox. At day camp. Recently.

This is a glimpse of the perfect babysitting client. Fun-loving, talkative, great location, and a fan of teenage mutant ninja turtles. I liked how he introduced his sister. "She's zero. [Thump] See? She fell down. She's a baby."

It's been a great week -- only a few rough hours with the weather changes and increasing the pH of the Kangen water. It gets complicated that you can't eat or take meds with it, but I think the "magic water" is helping! Hoping things continue to get better, so I can spend more time with little, small people. Small people who run down the driveway after just meeting you.


infectious happiness,

Sunday, July 18, 2010


Maybe read this one faster. Ready? Graduation party--Kangen water--running errands is fun--getting dressed in real clothes! I love books--Dr. Grubb delayed again--the CHP looks after its own--Krannert happy face. Then tired and grouchy and palpitations--slept 0 hours and 0 minutes--hit my head on the bathroom floor--"Do not be afraid"--then the power went out for 12 hours and how did people live before refrigerators? Sunrise. Stayed awake the whole day (yes!) and then slept for 11 hours! It was de- waitforit- lightful.

Saturday was the best day ever. They called me and I. BABYSAT. MY. CHILLUNS! zomg. We played soccer and had a party. Kate told me everything that I missed in the last 2 years. (Retainer-expander-braces-headgear! "Since February, Emma. FEBRUARY.")


In video games or seeking compromise at bedtime, Jack's favorite phrase is "Work with me". The first time he said those words, it struck me. That's my prayer. That's what I'm praying for. Work with me, God. And he does...?! God sees me and sympathizes with my pain always, which makes him good. But how he works, how he weaves messiness into opportunity, sooner or later, near or far, that's what makes him great. From tragedy to triumph, he's there. And yesterday? Triumph.

I think it starts with being open and embracing a spirit of humility. I'm just a teeny microscopic presence in this world. I'm not much matter, but I do matter. Who knows what's in store for the days ahead. All I can ask is, work with me. :)


Saturday, July 10, 2010


Pretty decent week! Got out for at least a little every day. Woot! Trying to pace myself and predict when I'll be doing well. The best thing a friend can do in this kind of situation is to be understanding of the spontaneity required on my end. I'm like, "I've been resting all day! Let's go shopping!"

Today I started Kangen water. "Kangen water is simply an easier way of stating: Alkaline, ionized, anti-oxidant electron rich, restructured, micro clustered, active hydrogen saturated, oxidation reduced, powerful living water." I'll keep you posted.


Monday, July 5, 2010


Thanks be to Sarah, who warned me about the caffeine in Sunkist, and thus saved my 4th of July. I had a good day! Deerfield parade, rested, fireworks. So groggy today, but hey, it's a small price to pay for a holiday. Remember last year when I had to stay home because my BP was 75/40? I'm much more stable now in comparison.

Invictus is a great movie. Oh South Africa. I'm homesick for a place I've never been to.


Friday, July 2, 2010


New theme: words that are fun to say.

"UniversityOfToledoMedicalCenter-Cardiology-ThisIsCarrie HowMayIHelpYou?"

Dr. Grubb's office is behind, so they won't be scheduling August appointments until July 9th. Hrmf. Hope I can still get in soon. Nasty tremors this week. We're looking into special POTS vitamins and Kangen water in the meantime.

Ow. Suddenly, headache. Otherwise a good day. Later.