My mom deserves an honorary degree in medical research.
- Most POTS patients are caucasian women in their teens, 20s, and 30s.
- Those who get POTS somewhat suddenly (as opposed to having lots of illnesses throughout childhood) have a better chance of recovering.
- There are three proposed "levels" of POTS:
- Level 1, slightly irritated by symptoms;
- Level 2, can't do as much as they would like to do, but overall still lead fulfilling lives;
- Level 3, moderately to completely disabled. Unable to work, study, etc. (I'm Level 3.)
- "Generally, people with POTS are busy, very physically fit, successful, and high achievers" (Mayo Clinic, 2007). Glory be, if that ain't the sweetest diagnosis a girl could ask for!
- Medical school study shows that "the tachycardia (heart racing) found in POTS is NOT caused by anxiety" (...will cite source).
- Medical school study shows that "70% of POTS participants on medication were able to return to work within 18 months" (...will cite source).
- It is theorized that there are different types of POTS, including IST-POTS and adrenal-dysfunction-related POTS.
Tomorrow I start Beta Blockers, a medication that some dysautonomics respond well to. I also will start taking an iron supplement, OTC eye drops, and a shampoo to help my alopecia (fancy word for hair loss).
Other things known to help POTS patients:
- Lots of fluids
- Increased salt in diet (10g/day) -- increases blood volume
- Exercises specific to reconditioning
- Keep positive!
Again, it is a great comfort to have a diagnosis and a certain direction to travel, but POTS is so new and so complex, there's no quick-fix or magic bullet. We've read that the average time for a full recovery is 2-5 years. It's going to take a LOT of patience and understanding. Getting a diagnosis is just the beginning.
We're in it for the long haul.