Tuesday, March 24, 2009

Christmas Rice Krispies

For the record, Christmas Rice Krispies are WAY better than the regular kind.

Last night was rough. I probably expend five times as much energy when trying to convince someone I'm doing okay. Fun, and much-needed catching up, but it's something I'm not used to: resting in anticipation of a short visit, and afterward it takes time to kind of "recharge."

I had a lot of trouble falling asleep. My eyelids were twitching nonstop when my eyes were closed; when I opened my eyes, I saw "shooting stars" and twinkling lights in my peripheral vision. I almost always see some kind of sparkling when it's dark, but this was almost scary. My eyes were really dry, so that could have added to it. When I woke up this morning, my eyes felt like they were burning. Ouch.

My hair seems to be falling out more than usual in the last couple days. So far the only explanation we've had for it is "stress"...maybe I'm just anxious for this doctor appointment. Two days!

Sent in my LGS diagnostic test yesterday, should get results in 2-3 weeks. =/ It's hard to be patient.

In reading other teens' blogs about POTS, CFS, etc, I am so happy that I've already graduated from high school. It would be so difficult to try to get through classes right now. My eyes (and body!) are so tired. The worst, I'm sure, is that these conditions are really hard for people to understand. It's not laziness, depression, or milking Mono for all it's worth. I hope everyone can learn a little empathy from my situation. Too often I think we give ourselves too much credit; we think we can assume details about other people's lives that we don't see with our own eyes.

I'm grateful so few people judge me in my circumstances. I hope we can give offer others a similar level of understanding and encouragement in challenging times.

"Stand in the Rain,"



  1. "I hope everyone can learn a little empathy from my situation."

    Me, too.

  2. I absolutely love that song at the end.
    -Your friend in Christ