Sunday, February 22, 2009

O Magnum Mysterium - Frances Poulenc

For a while we've been aware that "false negatives" in blood tests are somewhat common. Friends whose blood samples showed Normal ended up being diagnosed with Mono, Epstein-Barr, etc, later on in their illness.

Last night my mom read that it can take up to 10 years for Lupus to register in blood work and spinal taps.

...trying not to freak out...

We're getting lots of mixed signals about so many important things -- whether to exercise, whether to take sleep aids, whether to check out Mayo Clinic. Aggh. Not fun.

It took me 2 hours to fall asleep last night, with 3 Advil PM. Woke up every couple hours with back pain. My joints are just crazy. Elbows, wrists, hands, fingers, ankles,
hips, neck, back, jaw. Heart palpitations up the wazoo, headaches, still lots of eye problems.

Gotta get through this.

There are 120 boxes of Girl Scout cookies in my living room,
emma :)

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