Most people have no idea what to say to someone with POTS or another chronic illness.
My Top 3:
- How are you feeling?
- I'm thinking of you. / My heart goes out to you. / My prayers are with you. / etc
- That sucks!
My other advice: stay away from the phrase, "I know exactly how you feel." Hm, yeah. Unless you have or have had POTS, prob not so much.
Thanks for ALL your comments! Okee, back to our regularly scheduled program.
Slept SO much better last night, seeing improvement today. One thing I should mention, just for my fellow POTS patients, is that I've lost a considerable amount of weight in the last week or so. I don't think we should be worried [yet], as I had gained a lot on Prednisone most recently. I'm now about where I was when I left for school last August. Just something else to ask Dr. Gilden about on Tuesday.
Yesterday my sister had her choir concert! And I made it through 30 minutes of it! She was so terrific, lemme tell ya. "Je le Vous Diray" was flawless! I was so glad I was able to make it, even if I had to go home terribly early. Half an hour of sitting up, heart rate jumped to about 105 bpm. Super dizzy, hard to keep my eyes open. Bleh.
But Julia is awesome!
Go Cubs Go!