The last few days have been miserable. Very frustrated with the Midodrine. My numbers (esp heart rate) look better than a week ago, but my symptoms are SO much worse. The fatigue is unbearable. [Thoughts, fellow POTS patients?]
Stupid doctor hasn't called us back, so we're taking matters into our own hands. Stopping the Midodrine and doubling the Atenolol (beta blockers) to 25mg twice a day. Still a relatively low dose. We'll see what happens. Please good things!!
Swam today! I am EXHAUSTED out of my mind. I was surprised I lasted as long as I did. My heart is a tired little champ. :)
water in my ears,
emma
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"My numbers (esp heart rate) look better than a week ago, but my symptoms are SO much worse."
ReplyDeleteWeird. One would think that numbers and symptoms would go together a little more.
"Stupid doctor hasn't called us back"
That's gotta be annoying.
"so we're taking matters into our own hands"
I'm caught between the virtue of taking charge of things and the potential folly of changing medications without doctor recommendation. Be careful.
Also, zoombinis was awesome