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The Disclaimer
Long Story Short
Estimated Recovery Time
What is POTS?
About Me
- Emma
- I'm looking forward to growing healthy again...hopefully sooner than later. :) My posts' titles are themed by month, silly stuff like cereal and cartoons. It makes a "health blog" a lot more fun to write. =D
I Have...
- POTS (Postural Orthostatic Tachycardia Syndrome)
- Orthostatic Intolerance (OI)
- Raynaud's Phenomenon
- Four Protruding Discs in my Neck (...not sure if that's been a contributing problem)
Labels
Informative Articles
Other "Treatments"
- *Tilt-training!
- Swimming & water aerobics - help circulation
- Compression stockings - helps circulation
- Lots of fluids
- High-sodium diet
- Tilting bed up
- Resting!
- Ginger ale for nausea
- Ice packs for muscle aches
- Stretching / Light exercises (as energy permits)
Followers
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Comments
*Clarification!*
I've Seen...
- U of I Campus Physician (2)
- General Practioner
- Pediatrician
- Chiropractor (2)
- Neurologist
- Rheumatologist
- Ophthalmologist (2) / Optometrist
- Internist (Mayo)
- Cardiovascular Disease Specialist (Mayo)
- Dermatologist (Mayo)
- Gastroenterologist - Liver specialist (Mayo)
- Neurologist (Mayo) - DIAGNOSIS!
- Endocrinologist - POTS Specialist
- Cardio Electrophysiologist * [currently, 2]
- POTS Specialist (Dr. Grubb)
- Neurosurgeon
- Gastroenterologist
I've Already Been Tested For...
- Food Allergies
- Celiac Disease / Gluten Intolerance (2x)
- Mononucleosis (at least 2x)
- Ulcer
- Thyroid Issues
- Heavy Metals
- Lyme Disease / Parasites
- Diabetes
- Anemia
- Hormone Imbalances
- Gall Bladder Issues
- Liver Issues
- Pancreas Issues
- Epstein-Barr
- Guillain-Barre
- MS
- Brain Tumor
- Spinal Tumor
- Lupus
- Lots of other Auto-Immune Diseases
- Porphyria
- Intestinal Permeability (LGS)
Symptoms, Past and Present
- Overall Weakness & Excessive Fatigue
- Difficulty Standing / Being Active for "Normal" Period of Time
- High Heart Rate & Low Blood Pressure
- Headaches / Migraines
- Lightheadedness, Fainting (once)
- Low-grade Fever (around 99-101 since mid-February)
- Flushed -- looks like sunburn
- Feeling Hot / Cold
- Short-Term Memory Loss / Forgetfulness
- Brain fog / trouble concentrating
- Difficulty falling / staying asleep
- Nightmares / Nighttime anxiety
- Nausea
- Dizziness / Vertigo
- Excessively Thirsty
- Congestion / Bloody Noses
- Phantom Smells (Smoke, Rotten Eggs, etc.)
- Hair Loss / Itchy Scalp
- Heart Palpitations (often fast and/or very painful)
- Chest Pain
- GI Problems
- Stomachaches / Intestinal cramps
- Involuntary twitching
- Tremors, Esp. Knees, Hands, & Jaw
- Numbness / Tingling in Extremities and Nose
- Joint Pain
- Backache / Back spasms
- Neck ache
- Shortness of breath
- Poor Vision, Esp. Peripheral
- Difficulty reading / moving eyes
- Itchy, Dry Eyes / Difficulty Producing Tears
- Pupils change size
- Sensitivity to Light & Sound
- Ringing / Whistling in Ears
- Earache / Inner Ear Spasms
- "Hyper-Vigilance" haha
A Few Acronyms...
- ANS - autonomic nervous system
- CFS - Chronic Fatigue Syndrome
- bb's - Beta blockers
- POTS - Postural Orthostatic Tachycardia Syndrome
- bp - blood pressure
- hr - heart rate
- rhr - resting heart rate
- bpm - beats per minute
I'm Currently Taking...
- Magnesium supplement
- Midodrine (ProAmatine) - 7.5 mg 3x/day
- Florinef (Fludrocortisone) - 0.1 mg/day
- Ambien CR (sleep aid) - 12.5 mg/day
- Ibuprofen - as needed
- Extra-strength Tiger Balm - as needed for muscle pain
- Women's daily multi-vitamin/mineral
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