I'm totally off the Florinef. I think my body's doing okay with that; I've noticed fewer sparkle episodes upon standing.
Previously I'd been taking 30mg of Midodrine daily, in 10 mg pills. One at about 8 am, noon, and 4pm. This week (per Dr. Rogers's directions) I stopped taking the 4pm dose. Just going through adjustments... some easier than others. Digestion's getting better, taking risks in small bites. I'm sleepy more and sleeping more, sometimes 12 hours a day. Feeling kinda foggy-minded, kinda slow, kinda sad, but all in perspective. I've been through drug changes before, and I can separate my thoughts from me. My brain's still strong, and I love that-- even read a 400-page novel in 5 days!
This week - 2 pool workouts, 25 minutes ea. Sore the next day. Need to stretch more.
I look like I weigh about 105 lbs. This week I checked in at 114 and 111 lbs. (Disclaimer on all weight-related entries: Weight is neither a complete nor an accurate indicator of health. Within a given month, it is normal for a person's weight to fluctuate, especially for menstruating women. It is my goal to gain weight, and to do so healthfully, mindfully. I am unique, as is everyone. I could say a lot more about unsafe eating and/or exercise habits but will save that for another time.)
Otherwise, keeping up somewhat socially. Starting a regular multi-vitamin tomorrow. Avoiding some things, like cleaning my room. It's beyond wreckognition! Better get on that...after a long snooze.
peace,
emma
Thursday, May 26, 2011
Saturday, May 7, 2011
A Week Off Florinef
It's been up-and-down. My veins are more visible. Been dizzy, achy, moody. I didn't go into the office this week; hoping to feel well enough to return soon. The biggest change I've noticed for myself is having to give myself a few seconds to adjust between lying down/sitting/standing. If I jump up too quickly, suddenly a disco floor sparkles wildly around me and I have to lean on something.
The exercise portion of my treatment is, eh, delayed. I'm stretching some here and there. Using light weights during a commercial break. Taking care of one thing at a time, and right now it's rest. I'm sleeping about 10 hours a night instead of eight. (I have no idea if any of this is typical, just reporting my findings.) Digestive issues make me unhappy. I just want to eat a chocolate-chip-brownie-walnut-waffle sundae! Dream on, sugar plum. At present my diet consists of rice... and like 5 other foods that don't make me nauseous.
Brain tired from computer. Later days!
emma
The exercise portion of my treatment is, eh, delayed. I'm stretching some here and there. Using light weights during a commercial break. Taking care of one thing at a time, and right now it's rest. I'm sleeping about 10 hours a night instead of eight. (I have no idea if any of this is typical, just reporting my findings.) Digestive issues make me unhappy. I just want to eat a chocolate-chip-brownie-walnut-waffle sundae! Dream on, sugar plum. At present my diet consists of rice... and like 5 other foods that don't make me nauseous.
Brain tired from computer. Later days!
emma
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