Long, long day. Slept only 3 hours last night. Orientation for prospective new students left me overwhelmed, tired, and sunburned. My physical reaction to the weather isn't as dramatic as my last visit, but I do have more endurance than at home. Foggy and spacing out during the speakers. USD is a terrific school. We'll see if it's in the cards. Will meet with disability services on Monday.
It really comes down to how I'm feeling and whether I can bounce back. One day at a time! :-)
research,
et
Saturday, April 10, 2010
Friday, April 9, 2010
Happy - Leona Lewis [SD 1]
We made it to San Diego last night. It's sunny and 70. Sleepy and sore but looking forward to getting out in the sun.
To the woman next to us on the plane, my apologies. I didn't mean to stare. Your 5-inch heels were unbelievable. You walk in those? Through an airport?! And keep them on for a four-hour flight? Brave or insane, I can't tell.
More later!
java jive,
emma
To the woman next to us on the plane, my apologies. I didn't mean to stare. Your 5-inch heels were unbelievable. You walk in those? Through an airport?! And keep them on for a four-hour flight? Brave or insane, I can't tell.
More later!
java jive,
emma
Wednesday, April 7, 2010
Spinning Wheel - Blood, Sweat, & Tears
Sore and exhausted, but happy with yesterday's workout.
My blood is cold and unsettled. My mom and I leave tomorrow for San Diego, and I don't quite know how to feel about it. Open mind, right? Trying to look at the trip as a vacation. No pressure about school, just exploring the options. Health above all.
"Your wrists look like a baby's."
"Wait, don't babies have fat wrists?"
[thinks] "Your wrists look like Jimmy's when he was four."
"Ah. Well put."
Please pray for safe travels!
peace,
emma
My blood is cold and unsettled. My mom and I leave tomorrow for San Diego, and I don't quite know how to feel about it. Open mind, right? Trying to look at the trip as a vacation. No pressure about school, just exploring the options. Health above all.
"Your wrists look like a baby's."
"Wait, don't babies have fat wrists?"
[thinks] "Your wrists look like Jimmy's when he was four."
"Ah. Well put."
Please pray for safe travels!
peace,
emma
Monday, April 5, 2010
But Anyway - Blues Traveler
Making a conscious effort to eat more.
[On TV, a trailer for a famous film.]
"Wait, what movie is this?"
"I dunno. One of those fighting ones?"
et
[On TV, a trailer for a famous film.]
"Wait, what movie is this?"
"I dunno. One of those fighting ones?"
et
Sunday, April 4, 2010
How He Loves - David Crowder
Busy day! Church; family; it's raining now. I'm tired and foggy but thankful for today.
"Oh! Emma, you'd be interested to hear this: Did you know that middle children are 158% more likely to join a gang?"
"...well I guess that explains it."
Family gatherings. You can't make this stuff up.
et
"Oh! Emma, you'd be interested to hear this: Did you know that middle children are 158% more likely to join a gang?"
"...well I guess that explains it."
Family gatherings. You can't make this stuff up.
et
Friday, April 2, 2010
Dr. Grubb's Office
Today: University of Toledo Health Center, Division of Cardiology, Autonomic Disorders Clinic
For: Beverly Karabin, PhD, RN, CNP
Time: 1.5 hours
Result: Good stuff, vague stuff, feeling really tired.
In the waiting room where my sister plays 10 games of solitaire, and stares curiously at an overweight stranger's t-shirt. "I ♥ COWS", a giant cheeseburger on the back. She sips from an extra-large McDonalds cup. Seriously? You're in the office for cardiology, steps away from the emergency unit. It's not my place to judge, ever. But I'm keeping an eye on this food revolution Jamie Oliver's got going.
The doctor is understanding and knowledgeable. Presented some detailed (albeit limited) studies and data. She reads through my various work-ups, talks meds, school, San Diego, etc. Reinforced (1) POTS will not shorten my life; I will grow out of it; (2) We're doing everything right (tilt-training, salt, etc); (3) We can work with USD's administration to get as much help as we need to make school possible for me. Beverly has spent the last 5 years (and just completed!) her dissertation on *ahem* "College Students with the Hidden Disability of Orthostatic Intolerance." BAM. A personal note from a specialist, oh, AND 328 pages of research... well that's handy.
Getting tired so I'll wrap this up: She's enthusiastic about school, but honest that the road may be bumpy. Respected my past Rx attempts and recommended a stimulant to boost energy; prescribed Wellbutrin (to begin after I get home from SD). Then we'll monitor Celexa and Florinef. Pointed out patients who have gone on to live happy and full lives, and even having natural children. So. Hope. Get through today. Nothing is impossible!
Not sure if the visit itself was worth the drive, but it's cool to be officially on Grubb's patient list. He sees 1500 a year, just with POTS. I'm worn out from sitting up in the car. Gotta rest up. Six days to San Diego!
My sister is cool. My mom is cool. {mufflemufflemuffle) from Project Runway is cool.
love,
emma
For: Beverly Karabin, PhD, RN, CNP
Time: 1.5 hours
Result: Good stuff, vague stuff, feeling really tired.
In the waiting room where my sister plays 10 games of solitaire, and stares curiously at an overweight stranger's t-shirt. "I ♥ COWS", a giant cheeseburger on the back. She sips from an extra-large McDonalds cup. Seriously? You're in the office for cardiology, steps away from the emergency unit. It's not my place to judge, ever. But I'm keeping an eye on this food revolution Jamie Oliver's got going.
The doctor is understanding and knowledgeable. Presented some detailed (albeit limited) studies and data. She reads through my various work-ups, talks meds, school, San Diego, etc. Reinforced (1) POTS will not shorten my life; I will grow out of it; (2) We're doing everything right (tilt-training, salt, etc); (3) We can work with USD's administration to get as much help as we need to make school possible for me. Beverly has spent the last 5 years (and just completed!) her dissertation on *ahem* "College Students with the Hidden Disability of Orthostatic Intolerance." BAM. A personal note from a specialist, oh, AND 328 pages of research... well that's handy.
Getting tired so I'll wrap this up: She's enthusiastic about school, but honest that the road may be bumpy. Respected my past Rx attempts and recommended a stimulant to boost energy; prescribed Wellbutrin (to begin after I get home from SD). Then we'll monitor Celexa and Florinef. Pointed out patients who have gone on to live happy and full lives, and even having natural children. So. Hope. Get through today. Nothing is impossible!
Not sure if the visit itself was worth the drive, but it's cool to be officially on Grubb's patient list. He sees 1500 a year, just with POTS. I'm worn out from sitting up in the car. Gotta rest up. Six days to San Diego!
My sister is cool. My mom is cool. {mufflemufflemuffle) from Project Runway is cool.
love,
emma
Thursday, April 1, 2010
Our Time Has Come - James Ingram
Made it to Toledo. Keeping low expectations and an open mind for tomorrow's appointment.
Raleigh wins Pup Of The Month!!
free candy,
et
Raleigh wins Pup Of The Month!!
free candy,
et
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