You know, if it weren't "xoxo" it would be "ox ox." No animal is half so romantic as an ox, or pair of oxen if you will. Haha...makes me think of the computer game Oregon Trail. I was quite fond of trading with the local natives and acquiring dysentery.
Last night I went to bed at 11:15, took 3 Advil PMs, and couldn't fall asleep until 4:30. Hands and feet really achy, back spasms, wrists sore, really dizzy. Today I've been feeling like my hands are closing in on themselves. Taking a break from reading/writing for a while...time to rest my hands and eyes.
I started the Prednisone today. Feeling a little bit better, a little more energy, at least within the hour I took it. But I'm noticing pain in places I didn't have it before. My jaw feels really tight. And my body temperature appears to change often. Still having heart palpitations and have grown tired in the last few hours. I'm taking 15 mgs/day for 2 weeks. If I don't see improvement in about 5 days, I can stop taking it.
I'm trying not to think about the fact that it's Valentine's Day. February 14th! When I came home for the second time, on November 17, I felt certain that with a little rest and doctor's care, I'd be fully recovered by Thanksgiving: November, what, 26th? I feel stuck. Stuck in the Molasses Swamp of life. And it's not sweet!
Anyway, in honor of Valentine's Day and my deep love for childhood movies, I just watched Babe. A classic! The music is great, particularly the singing mice.
That'll do, Pig.
emma
Saturday, February 14, 2009
Friday, February 13, 2009
Throwing a Tantrum
I WANT A DIAGNOSIS!!! raaaaarrrrrr. :P nyah. not fair.
So, in case you haven't heard, all of the rheumatologist's tests came back normal. All of them! Sheesh! Couldn't just one be like "slightly low" or something? Looking at allllll my tests and allllll my charts and records and everything, you'd think I was "healthy as a horse," as these brainless lab people keep telling me.
AGH. frus. tray. shun.
The rheum. is putting me on Prednisone--like the Superman version of Ibuprofen. There are like 30 side effects. What the heck. This is absurd.
We've got an appt for 11am Monday to do some more tests (yippee).
Oh yeah. Today: Last night slept 11.5 hours. Still tired, I don't even feel like I look like myself any more. It hurts to smile. Not okay. Headaches, chest pain, dizziness, vertigo, numb fingers and feet, back pain, joint stiffness, etc etc.
Recognizing "To Write Love on Her Arms" Day -- always the day before Valentine's Day -- http://www.twloha.com/page.php?id=6
"everything's gonna be all right, rock-a-bye"
emma
So, in case you haven't heard, all of the rheumatologist's tests came back normal. All of them! Sheesh! Couldn't just one be like "slightly low" or something? Looking at allllll my tests and allllll my charts and records and everything, you'd think I was "healthy as a horse," as these brainless lab people keep telling me.
AGH. frus. tray. shun.
The rheum. is putting me on Prednisone--like the Superman version of Ibuprofen. There are like 30 side effects. What the heck. This is absurd.
We've got an appt for 11am Monday to do some more tests (yippee).
Oh yeah. Today: Last night slept 11.5 hours. Still tired, I don't even feel like I look like myself any more. It hurts to smile. Not okay. Headaches, chest pain, dizziness, vertigo, numb fingers and feet, back pain, joint stiffness, etc etc.
Recognizing "To Write Love on Her Arms" Day -- always the day before Valentine's Day -- http://www.twloha.com/page.php?id=6
"everything's gonna be all right, rock-a-bye"
emma
Thursday, February 12, 2009
Woah-oh, Livin on a Prayer
Slept 10 hours last night. Had a very strange dream about musicals at SHS.
Really sensitive to light today. Squinting as I type this. Went outside, and even though it was overcast, still felt very bright. We're looking into opthamologists in the area. Dizzy, tired, chest pain to no end, ear-ringing, stomach aches.
Fighting the optimistic vs. realistic battle on the CLC issue. Class tomorrow 9-noon. This is the last chance to take a class until May. Maybe it's just me, but I still think getting healthy is way more important than getting a couple Gen Ed credits. Some people have the feeling that by being away from school for so long, I'm "feeding" my school "phobia." Phobia, my butt. I would KILL to be back at school. Honestly. Not being able to read is eating me from the inside.
You watch a couple "What Not to Wear" marathons, trust me. You'll be begging for Faulkner.
I'd like to give a shout-out to the birthday boy, good ol' Abraham Lincoln...200 years young and doesn't look a day over 60.
sorry for the lame-wad joke,
emma
Really sensitive to light today. Squinting as I type this. Went outside, and even though it was overcast, still felt very bright. We're looking into opthamologists in the area. Dizzy, tired, chest pain to no end, ear-ringing, stomach aches.
Fighting the optimistic vs. realistic battle on the CLC issue. Class tomorrow 9-noon. This is the last chance to take a class until May. Maybe it's just me, but I still think getting healthy is way more important than getting a couple Gen Ed credits. Some people have the feeling that by being away from school for so long, I'm "feeding" my school "phobia." Phobia, my butt. I would KILL to be back at school. Honestly. Not being able to read is eating me from the inside.
You watch a couple "What Not to Wear" marathons, trust me. You'll be begging for Faulkner.
I'd like to give a shout-out to the birthday boy, good ol' Abraham Lincoln...200 years young and doesn't look a day over 60.
sorry for the lame-wad joke,
emma
Wednesday, February 11, 2009
Peanut Butter Jelly and a Baseball Bat
I now realize my spelling error from yesterday, but those vials really are vile.
Slept until noon today, a good 12 hours. Still don't feel rested when I get up though. Very, very tired and dizzy today. Lots of chest pain, palpitations.
Pizza for dinner!
signing off,
emma
Slept until noon today, a good 12 hours. Still don't feel rested when I get up though. Very, very tired and dizzy today. Lots of chest pain, palpitations.
Pizza for dinner!
signing off,
emma
Tuesday, February 10, 2009
Jump on the Bandwagon!
Hello. Welcome.
FAMILY! Hi. Yes, it's now 100% official and public. Sorry I didn't email you all sooner. Yep, the rumors are true. That diseased Trevor kid has a "blog." It's short for web-log, as in a log, or journal, that one keeps via the internet or "blogosphere." That's about the extent of my blog knowledge.
The address for my blog is http://emma-stronger.blogspot.com
You don't need to be a "member" or anything to read my blog. Feel free to add it to your favorites or spread it all 'round the family conifer.
The following devices are faces... :) .... :( ... =D ... :P ... >.< ... ^_^
For short-hand acronyms or slang references, I suggest urbandictionary.com ... or just ask me. You can leave comments on the blog itself (visible to everyone), or contact me via email (emmatrevor@gmail.com) or on Facebook (Emma Trevor).
The column on the right can guide you through all my past entries. I do have some privacy settings on blogspot, though. People can't just search and find this blog. They need the actual address...so hopefully not too many creepers. No worries =)
All right, without further ado,
Today, Tuesday. 2/10/09
Woke up at 6--nightmares. Unable to get back to sleep. Bummer to get only 6 hrs of sleep. Trying to get on a more normal schedule, but my body just won't have it! Mom and I walked outside for 32 minutes. SO WARM! And windy. I look plain silly in baseball caps, and (for the moment) it's too nice for a winter hat. Still thinking about doing something super dramatic with the hair I have left.
Symptoms today: bad headaches, dizziness, heart palpitations, chest pain to the extreme, fatigue, trouble concentrating, um...yeah. see previous days.
~RHEUMATOLOGIST~
This is what you really wanted to read.
Dr. Bodkin seems great. Listened to the saga and checked out my records (says the bulging disks are not a big deal!!! whaaaat?!). Took 8 viles of blood for testing. Will have results next week. Tests include psoriasis, arthritis, tons of auto-immune stuff, um, rare disease stuff, antibodies... ...yeah I wasn't there mentally for the last 40 minutes or so. Tooooo tired.
I update this blog every day. Will be sure to keep you posted. Posts are never this long, I promise!
love and more love,
emma
FAMILY! Hi. Yes, it's now 100% official and public. Sorry I didn't email you all sooner. Yep, the rumors are true. That diseased Trevor kid has a "blog." It's short for web-log, as in a log, or journal, that one keeps via the internet or "blogosphere." That's about the extent of my blog knowledge.
The address for my blog is http://emma-stronger.blogspot.com
You don't need to be a "member" or anything to read my blog. Feel free to add it to your favorites or spread it all 'round the family conifer.
The following devices are faces... :) .... :( ... =D ... :P ... >.< ... ^_^
For short-hand acronyms or slang references, I suggest urbandictionary.com ... or just ask me. You can leave comments on the blog itself (visible to everyone), or contact me via email (emmatrevor@gmail.com) or on Facebook (Emma Trevor).
The column on the right can guide you through all my past entries. I do have some privacy settings on blogspot, though. People can't just search and find this blog. They need the actual address...so hopefully not too many creepers. No worries =)
All right, without further ado,
Today, Tuesday. 2/10/09
Woke up at 6--nightmares. Unable to get back to sleep. Bummer to get only 6 hrs of sleep. Trying to get on a more normal schedule, but my body just won't have it! Mom and I walked outside for 32 minutes. SO WARM! And windy. I look plain silly in baseball caps, and (for the moment) it's too nice for a winter hat. Still thinking about doing something super dramatic with the hair I have left.
Symptoms today: bad headaches, dizziness, heart palpitations, chest pain to the extreme, fatigue, trouble concentrating, um...yeah. see previous days.
~RHEUMATOLOGIST~
This is what you really wanted to read.
Dr. Bodkin seems great. Listened to the saga and checked out my records (says the bulging disks are not a big deal!!! whaaaat?!). Took 8 viles of blood for testing. Will have results next week. Tests include psoriasis, arthritis, tons of auto-immune stuff, um, rare disease stuff, antibodies... ...yeah I wasn't there mentally for the last 40 minutes or so. Tooooo tired.
I update this blog every day. Will be sure to keep you posted. Posts are never this long, I promise!
love and more love,
emma
Monday, February 9, 2009
Hot Chocolate
Last night I slept for 11.5 hours. Weird dreams, but no nightmares. Yay!
Today has been very, very tiring. Fewer palpitations, but lots of headaches. My eyes and ears are still very sensitive. Silverware and plates are the worst.
Today I discovered the stash of hot chocolate in our pantry: well over 50 packets of hot chocolate!! I plan to enjoy as many as I can before winter's over and hot-choc becomes obsolete.
*Rheumatologist appt tomorrow!* Prayers are appreciated. I have a feeling this will be a turning point in the saga of the plagued polio child.
mini-marshmallows,
emma
Today has been very, very tiring. Fewer palpitations, but lots of headaches. My eyes and ears are still very sensitive. Silverware and plates are the worst.
Today I discovered the stash of hot chocolate in our pantry: well over 50 packets of hot chocolate!! I plan to enjoy as many as I can before winter's over and hot-choc becomes obsolete.
*Rheumatologist appt tomorrow!* Prayers are appreciated. I have a feeling this will be a turning point in the saga of the plagued polio child.
mini-marshmallows,
emma
Sunday, February 8, 2009
GRAMMY'S!
A great big round of applause to Coldplay and Adele -- the two artists I was rooting for at the Grammy's tonight. Great performances both...and award-winners!!
Today Mom and I went for a walk... 35 MINUTES!! And the first 10 minutes consisted of crazy-fast power walking. Quite wiped out by the time we got home...and my hips don't lie. I'm gonna be sore in the morning. So sunny! Very nice. :)
Today: dizziness, massive headaches, difficulty reading, shortness of breath, heart palpitations, chest pain, stomach pains, really heavy eyelids/my eyes just look really swollen. tiredness, muscle weakness, a little numbness, hair still falling out. Chest pain is my biggest complaint right now. I've only been sleeping 8.5 hours the last couple nights...significantly less than my normal 10-12.
Cell phone is back in working order.
Mom found some interesting information on Guillain-Barre Syndrome...will definitely ask about it at the rheumatologist's on Tuesday.
viva la vida,
emma
Today Mom and I went for a walk... 35 MINUTES!! And the first 10 minutes consisted of crazy-fast power walking. Quite wiped out by the time we got home...and my hips don't lie. I'm gonna be sore in the morning. So sunny! Very nice. :)
Today: dizziness, massive headaches, difficulty reading, shortness of breath, heart palpitations, chest pain, stomach pains, really heavy eyelids/my eyes just look really swollen. tiredness, muscle weakness, a little numbness, hair still falling out. Chest pain is my biggest complaint right now. I've only been sleeping 8.5 hours the last couple nights...significantly less than my normal 10-12.
Cell phone is back in working order.
Mom found some interesting information on Guillain-Barre Syndrome...will definitely ask about it at the rheumatologist's on Tuesday.
viva la vida,
emma
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